Thank you for your interest in the Sarcoma Patient Registry Program.  The Registry records the significant events of the history and treatment of patients diagnosed with Sarcoma.  The Registry is a data collection and reporting system hosted by Registry Partners and managed by SFA.

The Registry’s endeavor is to collect, store, analyze and interpret data on persons with sarcoma.  We invite you to participate in our efforts to make the Sarcoma Patient Registry information as accurate and comprehensive as possible.  By contributing, your data will be a valuable resource for oncologist and researchers conducting clinical trials and medical studies.  Most of all, you will be helping to improve the care of current and future sarcoma patients.

You are eligible to join the Registry if you have been diagnosed with any of the following sub types of sarcoma:

• Dermatofibrosarcoma protuberens (DFSP)
• Clear cell sarcoma
• Alveolar soft part sarcoma
• Myxoid liposarcoma
• Osteosarcoma
• Malignant peripheral nerve sheath tumors (MPNSTs)

If you have one of these sarcoma sub types, please send an email to sfa@registrypartners.com with your contact information and the most convenient time and method to contact you.